摘要： 目的·探索家庭負(fù)擔(dān)量表（Family Burden Scale，F(xiàn)BS)的自評(píng)方式用于神經(jīng)性厭食癥患者照料者負(fù)擔(dān)評(píng)定的信度和效度。方法·納入2017年7月—2019年7月于上海交通大學(xué)醫(yī)學(xué)院附屬精神衛(wèi)生中心進(jìn)食障礙診治中心診治的女性厭食癥患者103例及其照料者(父母)148人。記錄患者及照料者的一般人口學(xué)資料，患者的病程及體質(zhì)量指數(shù)(body mass index，BMI)，以及照料者每日照顧患者的時(shí)間。照料者接受FBS、貝克焦慮量表（Beck Anxiety Inventory，BAI）、貝克抑郁量表（Beck Depression Inventory，BDI）、健康調(diào)查簡(jiǎn)表（the MOS item short from health survey，SF-36）的自評(píng)。隨機(jī)數(shù)字法抽取1/3照料者進(jìn)行FBS他評(píng)。通過計(jì)算Cronbach's α系數(shù)、自評(píng) - 他評(píng)一致性、夫妻間（41對(duì)夫妻）一致性來評(píng)定量表信度；通過計(jì)算FBS自評(píng)得分與病程、患者BMI、每日照料時(shí)間、BAI評(píng)分、BDI評(píng)分，以及SF-36的精力、社會(huì)功能、情感職能、精神健康因子分的相關(guān)性來評(píng)定量表的效度。結(jié)果·FBS的Cronbach's α系數(shù)為0.921，自評(píng) - 他評(píng)相關(guān)系數(shù)r=0.705（P=0.000），夫妻間一致性評(píng)分的相關(guān)系數(shù)為r=0.547（P=0.000）。FBS總分與病程、%BMI及每日照料時(shí)間無相關(guān)性；與BAI得分、BDI得分，以及SF-36的精力、社會(huì)功能、情感職能、精神健康因子分呈現(xiàn)一定相關(guān)性（均P<0.05)。結(jié)論·FBS的自評(píng)方式應(yīng)用于評(píng)估厭食癥患者的照料者負(fù)擔(dān)時(shí)顯示出較好的信度，但其效度并不理想，需要進(jìn)一步修訂。

關(guān)鍵詞: 神經(jīng)性厭食癥, 照料者負(fù)擔(dān), 家庭負(fù)擔(dān)量表, 貝克焦慮量表, 貝克抑郁量表, 健康調(diào)查簡(jiǎn)表

Abstract:

Objective · To explore the reliability and validity of self-rated Family Burden Scale (FBS) evaluating caregiver burden in families of the patients with anorexia nervosa (AN). Methods · The study included female AN patients (n=103) treated in the Eating Disorder Center of Shanghai Mental Health Center, Shanghai Jiao Tong University School of Medicine from Jul. 2017 to Jul. 2019 and their caregivers (parents, n=148). General demographic information of the patients and their caregivers, the course of illness and body mass index (BMI) of patients, and the time each caregiver spent in caring for the patient per day were recorded. FBS, Beck Depression Inventory (BDI), Beck Anxiety Inventory (BAI), and the MOS item short form health survey (SF-36) were self-rated by the caregivers. One-third of the caregivers were selected by random number method for FBS rating by specialists. The reliability of the scale was evaluated by calculating Cronbach's α coefficient, self-rating and other-rating consistency and the consistency between husband and wife (41 couples). The validity of the scale was evaluated by calculating the correlation of FBS score with the course of disease, patients’ BMI, the time spent in caring per day, scores of BAI and BDI, and vitality, social function, role-emotion and mental health domain of SF-36. Results · The Cronbach's α coefficient of FBS was 0.921, the correlation coefficient between self-rating and other-rating by specialists was 0.705 (P=0.000), and the correlation coefficient of consistency score between couples was 0.547 (P=0.000). FBS score showed no correlation with the course of disease, %BMI and the time spent in caring per day. Scores of BAI and BDI, and vitality, social function, role-emotion and mental health domain of SF-36 showed low correlation with FBS score (all P<0.05). Conclusion · Self-rated FBS shows good reliability when used in families of AN patients. The validity is not as ideal, which suggests further revision of the scale.

Key words: anorexia nervosa (AN), caregiver burden, Family Burden Scale (FBS), Beck Anxiety Inventory (BAI), Beck Depression Inventory (BDI), the MOS item short form health survey (SF-36)

中圖分類號(hào): 

R749.92

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